I don't have Sleep Apnoea (I don't stop breathing during the night) and I don't have any heart irregularities while I sleep. All this awesome news means I don't have to take powerful drugs or use breathing machines


However, the 3 day / 2 night EEG did show some hiccups. As well as falling asleep during the scans my brain had turned off several times. When I went to bed I didn't get into deep sleep until 2am so the Neurologist agrees I'm definately a "night owl". He explained that without the right type of sleep at the right time of the 24 hour cycle (note he didn't say day or night) my body will keep being tired

You guessed it - the Neurologist is going to give me another appointment so he can suggest ways of re-working how and when I sleep. My Gym Trainer has also suggested new eating / excercising / napping times during the day so I'm going to try and get them both in touch with each other

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BotCon 2011 was bleeping awesome, but a few days after getting back to the UK this happened >
[link] and it was the most terrifying thing in my life

In November 2011 I had an EEG test to check my brainwaves while the Nurse did everything she could to force an epileptic seizure, but it came back OK (or at least there were no seizure for 30 minutes during the test) although it was recorded in my notes that I had fallen asleep in the Waiting Room before the Nurse came to get me

Just before Christmas 2011 I had a blood test that found HLA antibodies. They are associated with Narcolepsy so I was given a diagnosis of "possibly Narcoleptic" in January 2012. The Neurologist explained that if I didn't have the HLA, all future tests looking for Narcolepsy would have been cancelled because I can't have Narcolepsy without HLA

In March 2012 I spent a week having all sorts of different tests to confirm whether or not I have Narcolepsy. On the first Monday I was fitted with an EEG plus a small watch-looking device. The EEG is glued to your head and monitors your brainwaves for 3 days (2 full nights) while the watch thingy measures your activity for a full week. You must keep an accurate sleep diary for the entire week.
I went back to the Hospital on the middle day (Wednesday) for a "Multiple Sleep Latency Test" and to have the EEG tags removed. In plain Earthlingese the MLST is being shut in a dark room several times to see if you fall asleep, and removing EEG tags is one of the
most painful things EVER INVENTED!! Acetone is used to remove the glue but my skin didn't tolerate it, so I had to come home and remove it the old fashioned way... with lots of shampoo, clenching, and swearing!!

Finally, on the second Monday I returned all the paperwork and the watch-looking thing and now I have to keep waiting for the results to be analyzed...I just went back to the Neurologist today (April 2nd 2012) but for some unknown reason there's been a delay in analyzing my test results so I still
don't have an official confirmed diagnosis!
Keep up the sweating.............!!!
Some types of Epilepsy make your brain go
Do that a few hundred times during the day and unfortunately all that "lost time" really starts to add up
Sometimes I do get "instant dreams" when I'm trying to stay awake. It's like my brain circuits are trying to make me fall asleep even when they know they're not supposed to!
Just admit you daydream lol!!!!!!!
Unfortunately Narcolepsy is sometimes treated with powerful drugs, but the drugs cause more problems
This is why I am so happy, but now the Neurologist must investigate what is happening in my brain scans...
No matter what I do I just won't go to sleep at night until about 1am and I wake up naturally about 10am. That's a solid 9 hours but then I'll fall asleep again for about 3 hours more!!
If I'm tired I'll just fall asleep wherever I am which causes problems when I'm at someone's house, or supposed to be at work